Our Mission
Empowering Lives Touched by Sickle Cell Disease
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Sickle My Heart is dedicated to enhancing the lives of those affected by sickle cell disease through advocacy, awareness, and education. Founded by Jessica Jones, a devoted mother to a child with sickle cell anemia. Our mission is to spread knowledge about this relentless disease and drive efforts towards finding a cure.
About Us
A Mother's Heart: The Story Behind Sickle My Heart
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Jessica L. Jones, our founder, has witnessed firsthand the challenges faced by sickle cell patients and their families. Inspired by her daughter's resilience and the countless hospital stays, pain crises, and health battles, Jessica is determined to fight for a cause that brings light to this often misunderstood disease.
Programs and Initiatives
Awareness
Campaigns
Conducting educational campaigns to raise public awareness about sickle cell disease, its symptoms, and impacts.
Patient and Caregiver Support
Offering support groups and resources for patients and their families, providing a platform for sharing experiences and coping strategies.
Healthcare Advocacy
Working with healthcare professionals and policymakers to improve care standards and access for sickle cell patients.
Research for
a Cure
Collaborating with research institutions to support advancements in sickle cell treatment and cure research.
Educational Workshops and Seminars
Organizing workshops and seminars to educate communities, schools, and healthcare providers about sickle cell disease.
Stories of Resilience
Sharing Journeys of Courage
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Read inspiring stories from individuals and families battling sickle cell disease. These stories shine a light on the everyday heroes who face this challenge with bravery.
Sophia L. Woods
I'm thrilled to be part of the Sickle My Heart non-profit organization as an Ambassador.
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I'm not just a volunteer; I'm also the proud aunt of an amazing Warrior battling this disease and the niece of two loved ones, Rosie L. Wilkins and Arch Rounds Jr. (A.C), who sadly lost their lives to it.
This journey won't be easy, but my niece's determination and her life accomplishments inspire me to give my all. She's shown me that we can overcome anything.
02.05.2024
